Tuesday, September 16, 2014

What if I was asked these questions?


I started following another blog that is intriguing and thought provoking.  Below is his post of questions from his daughter.  His mental illness challenges are different than mine.  As I read the propose questions, I started wondering how would I answer these questions to my adult children? I asked Kevin's permission to use his list here.  Where the questions use the word Dad, I will switch those to Mom otherwise these are the questions I plan to tackle. 


http://voicesofglass.wordpress.com/2014/09/12/questions-to-a-parent-with-mental-illness-a-new-challenge/
So over the next month I am going to be doing the “Questions to a parent with mental illness” Challenge and here are a list of the questions which my daughter came up with…
  1. Am I part of the cause of your mental illness?
  2. Is mental illness hereditary?
  3. Do I make your mental health worse?
  4. When your mental health is bad, what can I do to help?
  5. When your mental health is bad do you try to protect me from it, and why?
  6. Why do you pull away and isolate from me, when your mental health is bad?
  7. What positives do you think your mental illness brings to our relationship?
  8. Tell me one thing that I do which makes your mental health better?
  9. Tell me one thing that I do which makes your mental health worse?
  10. If you had to choose just one of your mental health conditions which I would experience for a day. Which one would you choose, and why?
  11. Do you find it difficult to talk to me about your mental health, and if so why?
  12. How do you think your mental health effects our family now?
  13. Ho do you think your mental health effected our family in the past?
  14. How do you think your mental health will effect our family in the future?
  15. Choose one thing that you would change about your mental health if you could. And why?
  16. Which of your traits and personality would you like to pass on to me and why?
  17. Which of your traits and personality would you like me to avoid having and why?
  18. To me you are just my Dad, but how do you think others see you?
  19. What parts of your mental health do you think I would like to change, and why?
  20. I sometimes hear others putting labels on you. How does that make you feel?
  21. What are some of the things that you do which affect your mental health badly?
  22. What are some of the things that you do which affect your mental health positively?
  23. If I was the one who had your mental illness, and not you.  What would you want to ask me?
  24. If I was the one who had your mental illness, and not you.  What would you want me to know?
  25. How do you think your mental illness affects the way you love me?
  26. How do you think your mental illness affects the way I love you?
  27. How do you think your mental illness affects the way you allow me to love you?
  28. Do you think you will ever have really good mental health?
  29. Do you sometimes feel guilty for having a mental illness?
  30. If there was one thing that you would have me learn from your battle with mental illness, what would it be?

I think some of these questions would be thought provoking for any parent with or without mental illness.  I plan to put a link to each of his posts so you can read two different perspectives.  

Grandchildren look so much like my children did when they were that age.

Monday, September 15, 2014

Perseverance

The first step towards getting somewhere, is simply to decide that you are not going to stay where you are... then just move forward, one step, one day at a time...when you're overwhelmed, I know that's easier said than done, but do just one thing today to help yourself...do one thing you've put off doing...there is no big step or giant short cut that gets you where you need to be...it's lots of little steps and perseverance..


Perseverance: a continued effort to do or achieve something despite difficulties, failure, or opposition :  the action or condition or an instance of persevering :  steadfastness

http://www.merriam-webster.com/dictionary/perseverance


Perseverance is hanging on when there is no logical reason to do so.  Me


Perseverance is failing 19 times and succeeding the 20th.
 
 
By perseverance the snail reached the ark.

Great works are performed not by strength but by perseverance.
 
 
 “You may encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it.”
― Maya Angelou
 
 
“If you fell down yesterday, stand up today.”
― H.G. Wells
 
 
“If you are going through hell, keep going.”
― Winston Churchill


Today, I am looking for ways to encourage myself.  I know that one of the keys of survival is perseverance.  I've used it in my mantra, "I can do anything for 5 minutes.  I can live a long, long time, 5 minutes at a time."  I am tired but I have trouble sleeping.  I am overwhelmed but unwilling to quit.  I was chastised by one of my counselors for having a do-or-die attitude.  I looked at him calmly, "If I didn't have that attitude, I would be dead now."  I understood that what he meant was not everything I think to do is a life and death matter.  I need to let go of some things without believing it will kill me to do so.  I understood his intent was to help me relax.  I know that I am alive because I was and continue to persevere against all odds. I was going through hell and I kept going.  I am up against another challenge.  I need to decide what is it worth to meet the new demands or should I consider looking for a different job.  I like the work I do.  I enjoy the students.  The new stresses is making day to day living more difficult.  What price am I willing to pay?  I already know the recipe, perseverance wins hands down every time.  I remember watching a scene in the movie Gandhi.  He was going to vote.  The guard knocked him down.  Gandhi got up.  The guard knocked him down over and over yet each time Gandhi stood up.  What battle do I have that is worth getting up every time I am knocked down?  I am worth fighting for but at which battle front.  I need to rethink my priorities.  
 
     

Sunday, September 14, 2014

Angry with God

One of the blogs I follow tackled this feeling:

http://lemmonythings.com/2014/09/08/it-isnt-a-sin-to-get-mad-at-god/

My sister and I talked about this on many occasions.  During our Saturday walks, we call those walks Sister Therapy, we share our ideas on any subject we wish to discuss.  We enjoy lively conversations.  Often we discuss our relationship with Heavenly Father and our firm belief in Jesus Christ as our Savior.  We are both aware that talking about our anger a taboo subject in most circles.  I'm sharing my perspective and some of it will sound like my sister's perspective because we discussed it together.

Everything in my memory told me that I always believed in God the Father and His Son Jesus Christ.  I believe the Holy Ghost is as real as anything I can touch with my hand.  I believe in miracles.  I rephrase that, I rely on miracles.  I appreciate the many blessings I enjoy.  Sometimes I feel angry with God.  It wasn't until I was in counseling that I understood that anger is a secondary emotion.  My counselor taught me that hurt, fear, or frustration came first.  I have been hurt by what I felt was Heavenly Father not answering my prayers.  I felt fear that Heavenly Father didn't love me because of things I had done.  I felt frustration that what I thought were righteous petitions to the Lord were completely ignored.  I would get pissed off when people would piously tell me that God didn't give me what I asked for because He had something better for me.  What could be better than asking to be a good mother?  I spent 7 years struggling to be up more than 20 minutes a day while raising our children.  As I lay helplessly in bed, I was angry with God for not listening to my pleadings for strength.  My children cooked, cleaned, helped each other while I looked helplessly on.  I was so angry with God, I refused to read the scriptures, the only told me more things I wasn't doing and felt like a greater condemnation.  I didn't pray....what was the point He wasn't giving me what I asked for?  It was a dark, dark time. 

I was blessed in my early twenties when God touched my heart and reassured me that He loved me.  I didn't know at the time why this was so important for me to know.  I had an experience that I never doubted was a loving spirit wrapping me in arms I could feel but not see and hearing in my head. "My precious Ruth, you know I love you."  The next question left me troubled, "Are you going to help me?"  I felt again, "No, you are doing just fine."  This tender moment is when I understood that Heavenly Father's definition of fine and mine do NOT match.  I am studying the scriptures once again with an eye for how God interacts with His children.  My buddy Job, Joseph sold into Egypt, Ruth, Naomi, Esther, many of the prophets all had really tough lives.  Apostle Paul expresses his understanding that he has a thorn in his side that God is not removing. 

2 Corinthians 12:6-9
 6 For though I would desire to glory, I shall not be a fool; for I will say the truth: but now I forbear, lest any man should think of me above that which he seeth me to be, or that he heareth of me.
 7 And lest I should be exalted above measure through the abundance of the revelations, there was given to me a thorn in the flesh, the messenger of Satan to buffet me, lest I should be exalted above measure.
 8 For this thing I besought the Lord thrice, that it might depart from me.
 9 And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me.

I figured if Paul was going to be stuck with a thorn there was little hope for me to be rid of whatever pulled me so low.  I am not to the point of what Paul felt and glory in my infirmities.  Mental illness sucks so does cancer.  I feel angry.  My opinion, Heavenly Father can cope with me being angry.  I can rant and rave and tell Him exactly how I feel.  I like what Judy said, "God knows exactly how we feel any way, telling Him won't change it."  In my truth campaign, I am being honest with myself and God and tell Him exactly how I feel.  I feel broken, tired, frustrated beyond words, scared, lifeless, discouraged, and a whole host of feelings that sum up to feeling miserable.  He listens to my out pourings then blesses me with a spectacular sunrise.  It wasn't the blessing I was looking for it was the blessing I needed.  I have another day to try again.  I have another day to seek for and find the answers I am looking for.  I have another day to comfort others.  I have another day. 

Heavenly Father loves me so much that if I was the only one in the world He would still send His only Begotten Son Jesus Christ to die for me.  The rest is working out the details of living.  On this journey I learned to listen to the Holy Spirit to find answer that my young 20 year old self had no idea I was looking for.  My path in life is much different than I thought it would be.  My expectations of the strength I would find is so different.  I now know the difference between strength of body and strength of spirit.  I am blessed with more of both.  I can rage at Heavenly Father and he blesses me any way.  I can feel alone but Christ never leaves me. The Holy Spirit will guide me to places of peace that I never knew existed.  God is OK with me being angry as long as I can keep talking to Him and working through my hurt, fear and frustration.  When I am ready to accept, He will send His peace unto me.  He teaches me line upon line.

Isaiah 28:9-13
 9 ¶Whom shall he teach knowledge? and whom shall he make to understand doctrine? them that are weaned from the milk, and drawn from the breasts.
 10 For precept must be upon precept, precept upon precept; line upon line, line upon line; here a little, and there a little:
 11 For with stammering lips and another tongue will he speak to this people.
 12 To whom he said, This is the rest wherewith ye may cause the weary to rest; and this is the refreshing: yet they would not hear.
 13 But the word of the Lord was unto them precept upon precept, precept upon precept; line upon line, line upon line; here a little, and there a little; that they might go, and fall backward, and be broken, and snared, and taken.

A New Dawn





Saturday, September 13, 2014

Not moving

  1. How to have the space to consider the stuff you want to bring with you.
  2. What has outlived its usefulness to you?
  3. How you enjoy moving. In small and easy steps or with great focus and in one burst (or perhaps alternating these or another rhythm again).
  4. Whether you find it wiser to plan ahead or more enjoyable to be open to what you find.
  5. http://www.livingauthentically.org/
Evan asked these question: What if I am moving how would you answer these?  

I am going to tackle what if I am not moving, how would I answer these?

I am overwhelmed with stuff; I am not willing to let go.  I need to evaluate what I actually want.  One big room looks like a ransacked storage room.  It is supposed to be my sewing/crafting room.  I can walk two feet into the room.  I look at it or think about it and feel overwhelmed.  Evan's questions got me thinking.  I know from past experience I would box up everything and take it with me if I moved.  I know why I am like this.  I moved around a lot after I was married and we went from a U-haul truck to half a pickup truck in 4 years.  I heard moving three times is worse than having a fire.  I lived it. The move in the pickup bed trailer was a desperate move to get away from a miserable situation for my husbands work.  Now I desperately cling to all this stuff.  My daughter tried helping me clean but all I did was end up hyperventilating and having a panic attack.  I felt like such a failure that I hardly go in the room at all unless I absolutely have to.  Heavy sigh.

1.  I have a room that is large with two walk in closets.  Shelves line one wall.  I built a wrap around desk that houses my 2 sewing machines.  (I used to sew professionally so have both a regular machine and a serger.) 2 sets of drawers and cupboards plus shelves in the walk in closet.  I have two book shelves all of this crammed into the room.  Its a disaster area.

2.  I think there are many things stuffed in there that are totally useless.  I know there is a computer book that is 14 years old, back when people still had 6 inch floppy disks and zip drives.  (Kids now days don't even know what those are.)  Some of my drawing stuff and other things crunched in there haven't seen the light of day in 10-20 years.  Hmmm.....  Scary past objects in there.  (Side note:  I still remember the time I foolishly opened one of the mystery boxes from my past.  Set off weeks of reeling night mares.   Scary stuff is not useful.  I need to let it go.)

3.  I prefer easy steps a few boxes at a time preferably over several weeks.  My DH is a one weekend slam it through.  Reorganizing a room seems daunting when I am trying to suppress an anxiety attack at the same time.  However, at school, once I get going I can do a massive amount of moving of stuff all in one go.  Maybe I am giving myself too much time to think about what I am doing.  Head tilt.....maybe I need to rethink my approach.   

4.  I've tried planning ahead and all I do is make plans over and over and over....I use planning to procrastinate doing anything.  Wow! Interesting piece of insight. 

I've tried setting timers.  Using boxes marked: Belong someplace else, keep, and give away.  Even marked throw away. Failed at that.  I am tackling a new approach.  This time I am trying to visualize the space as useable and how would I like to use it.  Instead of thinking about getting rid of, I am flipping it around to what do I want available.  


Should I be brave and have a before and after picture?     Ooooooo scary. 


No pictures yet. 

Friday, September 12, 2014

Survivor's Guilt

The day after 9/11 is a day to reflect.  So many felt the bewilderment of "Why me, why did I survive and my loved one, coworker, fireman, police officer....or any other had to die?"

Survivor's guilt defined.  http://www.thefreedictionary.com/survivor+guilt

This is one of the emotions that I am trying to work through.  I am taking the advice of the article from one of the mass shootings and seeking professional help.
http://www.cnn.com/2012/07/24/health/survivor-guilt-ptsd/


Band back together created a page of resources.  I am posting it here so I know to go back and study more of the links.  http://www.bandbacktogether.com/survivor-guilt-resources/

I don't have answers for this.  I have questions and pain and sometimes the guilt is over whelming.  Why was I let go? Was it as simply that I became too old or too numb? 

Sometimes I feel it is my responsibility to stand up and say, "There is evil in the world.  Those evil people want you to believe that they don't exist.  Evil is real. I have witnessed it."

I have seen darkness, I am thankful for the Light of Christ.  He is my champion. 



Thursday, September 11, 2014

Survival

Desert Survival

Morning sunshine beating down on my head, sweat trickling down between my shoulder blades, clear indicators that desert survival means I brought my water bottle.  Hiking boots support my ankles as I pick my way up the path through the broken rocks and mountain shrapnel tumbled onto the Squaw Peak trail.  I respect the desert.  I call it home.  I was born in Phoenix, more than fifty years ago, and I grew up hiking amongst the cacti, sage brush, rocks and lizards.  Raised in the desert, I know how lethal forgetting water or getting stranded alone can turn a hike into a death march.  I appreciate the fact that hundreds of people make the Squaw Peak pilgrimage, so I can hike alone without being alone.  

After moving around the country I returned to Phoenix in poor health.  I could barely finish the grocery shopping without sitting down to rest.  I craved hiking the desert but didn’t want to tackle a desert trail alone.  I learned about the Squaw Peak trail and how many people made this trek and decided I could use this trail to get back into my beloved desert, at my pace. 

The first challenge for me was crossing the parking lot.  I am highly amused by the people that wait in their idling cars to get a close parking spot when they are there to hike.  There are parking spots stretched out for a mile, but everyone wants to park in the first lot.  Dodging cars with single hikers, I reach a dry wash just before the head of the trial.  Wooden signs remind visitors that the trail is not suitable for dogs, horses or mountain bikes. Looking at the cholla, saguaro, and barrel cactus it doesn’t look like it is suitable for humans either. 

I started my climb at a sedate stroll with more determination than energy.  People take up the challenge for a thousand reasons; for me, if I could make it to the top, I would be getting healthier.  The first day, I never made it to the first quarter-mile marker.  I rested against a rocky outcropping at a bend in the path.  I felt discouraged that the mountain so easily defeated me. 

The following week, with more determination than sense, I again tackled the rocky trail.  I started to pay attention to the cholla condominium next to the trail.  I am amazed that some intrepid bird built right next to the path in the middle of the spikes of the cholla.  The nest is certainly safe from humans, since no one would reach their hand into that menacing environment.  Further along the trail, I notice a manmade retaining wall about knee high.  I am curious about why it is there, amongst the rugged rocks.  Years later, I discovered that the little wall kept the mountain from washing across the path and creating a mini flash flood during the rain.  In Phoenix, rarely encountered rain wreaks havoc on the exposed trail.  I focus on the ground as I pick my way up the uneven steps and loose rocks.  I watch powder puffs of dust poof out from under my feet.  The dust settles across my shoes, spreading the grayness of the trail over my shoes and pant legs.  This time, I make it past the quarter mile mark and a good ways to the half-mile marker before my legs feel like ten-ton appendages.  I retreat back down, planning to attack the mountain again, the following week.    

O-dark hundred, the sun only shows an eerie glow on the horizon.  I hop on the freeway and head up the Squaw Peak spur.  I then swing off at Lincoln Avenue, and slow back down to city street speeds.  At the second light, I turn left into a residential area that skirts the Phoenix Mountain Park.  The speed limit drops to 15 miles per hour after the last house.  I feel like I am creeping at a snail’s pace after the hectic freeway speeds.  Signs warn of extreme fire hazard and no open flames; consequently, cigarettes must be extinguished inside their cars. I am happy to have an outdoor no-smoking zone.  By the time I reach the first parking lot it is full.  I don’t mind driving to the second parking lot closer to the restroom area.  Cars sprinkle this area, too.  I pick my spot, grab my water bottle, and hit the trail. 

I have never seen the dry wash run with water.  I do know that dry washes can be deadly, even if the rain is miles away.  The rain water in the desert gathers momentum quickly and skitters down these freeway washes.  Up the steps, out of the wash, I tackle the trail again.  The bottom part becomes more familiar with each trek.  The sun is hiding behind the other mountains close to Squaw Peak.  The blue sky dome of light brightens from the hidden sun.  By the first curve in the switchbacks, the sun peeps out, promising a scorching heat by noon. 

I take my time, picking my way up each switchback.  Every turn takes me up higher and slowly around the mountain.  The shrubs poke their spindly arms out into the pathway.  Scrawny and brittle, I brush easily past them.  I keep my eye out for intruding cholla.  Vicious hooks on the ends of each needle are designed to hook onto passing critters, to take the pod to a new location.  Occasionally, walking along the top of the short retaining wall proved easier than the steps that go up two feet at a time.  Boulders provide a spot of shade to rest behind.  The sun creeps above the opposing mountains and shines relentlessly on the exposed path.  Twisting around the shoulder of the mountain, I am once again shaded by the mountain.  I pass the quarter-mile marker, the bench at a third of a mile, and finally reach the bench that sits in the shade of the mountain at the half-mile marker.  I rest awhile, swinging my feet while a pleasant breeze scoots over the saddle of the mountain.  This is the dividing point.  One path does a circuitous route around the base of Squaw Peak and the steeper path heads for the summit.  I am heading for the summit.

Determination, more than strength, drives me to continue up the steep path.  Only half way up and already civilization takes on doll-like proportions.  The mountain drops off to the right, giving me a view of the parking lot full of matchbox cars.  I am struggling to keep going.  Each new step seems like the last leg of a marathon.  I need a distraction.  Every hiker passes me. I am so slow.  One hiker passes but doesn’t leave me in the dust.  He seems to be going at a steady pace.  I focus on his back and pretend that I am attached by a rope to the other hiker.  The guy doesn’t know of the mental games I am playing to keep myself going.  The back side of the mountain is cooler, with an updraft, and I wonder where this cool air comes from.  I keep my eyes on the hiker in front of me.  I have never gotten this far up the mountain before.  Each step seems to be an agony.  I don’t care.  I am determined to make the summit.  At the mile-mark, I am hit full force by the sun again as I top the edge of the mountain.  I collapse onto another bench.  The other hiker rests, too.  I can see his face, for the first time.  He looks pleasant.  I don’t ask his name.  It doesn’t matter.  He just helped me get another quarter-mile up the path. 

I realize I am just a quarter mile from the top.  Adrenaline pushes me back onto my feet.  The last part is mostly in the sun.  Sweat covers my forehead and the wetness feels good, my own personal swamp cooler.  As long as I am sweating, I am OK. 

The top of the mountain is playing hide-and-go-seek behind the boulders and rocks that impede the path.  I encounter a sharp incline up a rock.  A handrail is the only means for pulling me up the rock face.  Ten years later, the rock is replaced by stone steps and the handrail removed.  I struggle up more rocks.  The final stretch is steep and treacherous, but the summit is in view.  I hoist myself up the last little bit and perch on top, with the sun beating down on me.  Crumpling on rocks that feel like the softest cushions in a ritzy, hotel lobby, I rest my exhausted body.  It feels so good to be on top of my world.   I look down the mountain sides.  Ranks of saguaros spread out in every direction.  Ocotillos sway in the breezes. I am aware that I am not alone at the top.  The chatter around me is more like a party than the end of a brutal climb overlooking the freeway to downtown Phoenix.
The next four years, I tread my self-appointed pilgrimage, almost every weekend.  I was thrilled as I progressed to not only once up to the summit, but I actually started doing it twice in a day.  I watch the seasons pass, from the dusty grays and browns of summer to the dustier grays of winter, followed by an amazing riot of color each spring.  I changed jobs but not climbing the mountain.

I start to have trouble climbing the mountain.  I figured it was just fatigue from working a more demanding job.  September 11, 2001 stands clear and ominous in most people’s minds.  The reports of crashing planes barely infringed on my depression.  I stare at the computer monitors in the photo lab; the images repeated over and over.  My mind doesn’t seem to grasp that I am watching people die.  The grayness in my mind doesn’t lift.  The week before 9/11, I was diagnosed with cancer.  My world rocked.  I stared numbly as iron and concrete buildings collapsed.  None of the chaos in New York broke through the fog in my mind.  The following Saturday, I retreated to my desert to climb. 
I was too tired to attempt the summit.  The tiredness wasn’t from the cancer but from the depression brought on by the word.  I didn’t know a single word could create such a level of despair that the first time I uttered the words, “I have cancer,” I passed out.  I was only forty-four years old.  I was already scheduled for surgery, in less than a month.  My mind was reeling.  Thankfully I switched to automatic pilot to trudge up the mountain.  I pondered on the tragedy of planes crashing in three different locations in one morning; so many suffered terrible losses.  Families ripped apart, in a matter of moments.  I am despairing over surgery with a 98% chance of recovery.  The cholla seems more ominous than usual.  The mountain seems to grow with every step.  The bleak landscape seems like a suitable environment to ponder the deaths of so many, and the fear I feel about having cancer.  My world was shifting; only the rocks beneath my feet seem solid.  My mind and body ache as I trudge, one foot in front of the other.  I know I won’t make the summit.  I don’t want to stop at the bench at the mile marker in the sun.  I want to find a shaded retreat to sort out all that happened in one week.     
 
I climbed past the three-quarter marker to the shady side of the mountain.  I noticed a flat boulder large enough for me to sit on and look out over Phoenix, with its own mini skyscrapers.  Sitting there on the rock, I was face to face with the most battered saguaro I had ever seen.  Two thirds of it had hundreds of bullet holes and dings where people had used it for target practice with guns and rocks. I could see the rocks still stuck in the cactus.  It was still green and still growing.  I sat and stared at the scars on the cactus. “What is wrong with me?  The cancer was caught early enough that I only need surgery.  No chemo, no radiation.  I am going to survive.”  Then my heart broke for the thousands whose lives ended in an hour of terror.  I sat for a long time.  I thanked Heavenly Father for having the scarred cactus teach me that having scars doesn’t alter who I am.  Having cancer was only temporary.  I would survive.  Thousands of others did not.  In the desert, there is a toughness that I have never found anywhere else I have lived.  In the desert, there is survival.